October #Nchat Recap

This month, #Nchat kicked into high gear with one of the best attendance rates so far!  From embarrassing moments to how we’d spend the day symptom free, we chatted about a wide variety of subjects this month.  As always, if you have any questions or topics you’d like to suggest for #Nchat, feel free to send me […]

September #Nchat Recap: Happy Anniversary, #Nchat!

September 7th was the one year anniversary of #Nchat, the monthly Twitter narcolepsy chat I and two other people with narcolepsy host.  When I suggested we try a Twitter chat, I wasn’t sure how it would be received.  It’s really cool to see that people are enjoying the chats and are benefitting from them!  Thank […]

2nd Annual Strides Against Narcolepsy Virtual Run/Walk Raises Over $500 for Wake Up Narcolepsy

narcolepsyshirtmen

On the weekend of July 12-14th, people with narcolepsy and their supporters around the world participated in a virtual run/walk to raise money to support Wake Up Narcolepsy’s mission in funding research to find a cure.  With donations still trickling in as of yesterday, August 11th, the total amount raised was about $580.  Way to go, everyone!! […]

July #Nchat Recap

July 6th, 2013, marked the 11th Twitter narcolepsy chat, #nchat.  It is hard to believe what started as a little idea to help people with narcolepsy communicate with other people with narcolepsy has become such a wonderful tool for finding answers, advice, and support.  This month, questions came from the suggestions participants wrote in the survey that […]

2nd Annual Strides Against Narcolepsy Virtual Run/Walk July 12-14

I am pleased to announce the 2nd Annual Strides Against Narcolepsy Virtual Run/Walk to raise funds for narcolepsy research will be held July 12-14.  I’m even more pleased to announce that I’m partnering with Wake Up Narcolepsy, an organization whose mission is to support narcolepsy awareness and research to find a cure.  They have created […]

June #Nchat Recap

I have much to update on since my last post almost two months ago.  First, I want to share the June #Nchat recap.  This was the tenth #Nchat and one of my personal favorites!  While we suffer differently as individuals, we have so much in common.  I’m so honored to be a part of the […]

Governor Jay Nixon Proclaims March 9th as Narcolepsy Awareness Day in Missouri

IMG_1617

Remember when I posted about requesting a proclamation of Narcolepsy Awareness Day?  I am so excited to announce that I received a very special certificate in the mail.  Governor Jay Nixon granted my request and has proclaimed March 9th as Narcolepsy Awareness Day in Missouri! Thank you so much to Governor Nixon for helping to […]

March Narcolepsy Twitter Chat, #Nchat, Saturday, March 2nd, 2pm EST

The next Twitter narcolepsy chat, aka #Nchat, is scheduled for Saturday, March 2nd at 2pm Eastern Standard Time. (The time was pushed up a few hours in hopes of accommodating our international participants a little better.) This month’s topic is “Support.” Questions will be tailored specifically for PWN and for those supporting PWN. To learn […]

January #Nchat Recap: Watch Out 2013

Source: tumblr.com via Heather on Pinterest   January’s #NChat was nothing short of epic. For one, attendence was the largest we’ve seen so far with a healthy amount of “regulars” along with the addition of five new people to the chat. Participants were from the US, Germany, Ireland, and the UK. That’s right; #Nchat is […]

First #Nchat of 2013 Saturday, January 5th

If you have not attended a Twitter #Nchat, it’s time to make it a New Year’s resolution! On Saturday, January 5th, we will discuss goals for treatment, goals for raising awareness, and more. Join us at 5pm Eastern. Click here to read about the December #Nchat. Do you have question/topic ideas? Comment below or send […]