Oklahoma State Students “Dream Big” to Raise Awareness and Funds for Narcolepsy Network

kevinandmegg

On February 15th, 2013, Oklahoma State’s Union Theater will host the aptly named “Dream Big” benefit concert to raise narcolepsy awareness and funds for Narcolepsy Network. With performances by several talented students involved in the campus’ Greek community, this concert is sure to be a big hit. To Megan’s knowledge, this is the first time […]

December #Nchat Recap

The December #Nchat covered various topics from raising awareness to managing symptoms during the holiday season. Some common themes I noticed: There are so many ways people work to raise awareness. It makes me wonder how much more we could get done if we worked together on initiatives as a group instead of one person […]

Narcolepsy Twitter Chat Saturday, December 1st!

Get ready for another Twitter chat THIS Saturday at 5pm Eastern! Use hashtag #Nchat.  To read about last month’s chat, read this post. Do you have question/topic ideas?  Comment below or send them to stridesagainstnarcolepsy@gmail.com.  To learn more about making the most of a Twitter chat, check out this Quick Guide to Twitter Chats.  Hope […]

Raising Funds and Awareness Through Celebrating: Cat’s Birthday Benefit for Wake Up Narcolepsy

Cat Thoma isn’t having a typical birthday party this year.  Diagnosed with narcolepsy in 2012 after suffering with symptoms since childhood, she decided to ask her friends and family to help fund research for a cure instead of asking for traditional gifts.  She contacted Wake Up Narcolepsy, a not-for-profit organization “dedicated to supporting narcolepsy awareness […]

November #Nchat Recap: The Road to Diagnosis

Thank you to everyone who attended the November #Nchat on Twitter on November 3rd.  These chats are a great way to share experiences and to ask advice from others who may have been faced with the same problem.  This month, the chat was focused on the road to diagnosis and revealed instances of misdiagnosis, lack […]

Narcolepsy Twitter Chat Saturday 11/3 at 5pm Eastern!

Get ready for another Twitter chat THIS Saturday at 5pm Eastern! Use hashtag #Nchat. Do you have question/topic ideas? Comment below or send them to stridesagainstnarcolepsy@gmail.com To learn more about making the most of a Twitter chat, check out this Quick Guide to Twitter Chats. Hope you “see” you there!

Narcolepsy Twitter Chat Saturday, October 6th at 5pm Eastern

I’m pleased to announce the second Twitter chat for narcolepsy this Saturday at 5pm Eastern.  Please use hashtag #Nchat. I will be driving back from Florida, so I’ll be participating but not moderating.  To learn more about making the most of a Twitter chat, check out this Quick Guide to Twitter Chats.  Hope you “see” you […]

Narcolepsy Twitter Chat Saturday 9/1 at 5pm Eastern!

twitter-bird-white-on-blue

I’m pleased to announce the inaugural Twitter chat for narcolepsy this Saturday at 5pm Eastern.  Please use hashtag #Nchat.  This chat will be hosted/moderated by myself and two other PWN.  To learn more about making the most of a Twitter chat, check out this Quick Guide to Twitter Chats.  Hope you “see” you there!

For Real Awesome Virtual Walk/Run for Narcolepsy

Since no one was with me to take a picture of me running, I snapped this picture of my shadow.  It's somewhat poetic....

July 14th, 2012 is a date that will stick in my mind forever.  At 9:30 that morning, I set out to complete my run for the first ever Virtual Run/Walk for Narcolepsy Research.  In just two short weeks, 38 people “liked” the Facebook page – more than I thought since it was created on a […]

Two Days Until the Virtual Run/Walk for Narcolepsy Research!

Virtual Run/Walk for Narcolepsy Research July 14th Inspired by Makenna’s story, which you can read about here, I thought it was time that I did something besides donate a little money to the cause.  I want this cause to be bigger.  I want people caring as much about the daily struggles that we go through as […]