Research Presented at SLEEP 2013 Demonstrates Challenges Faced by People with Narcolepsy

Earlier this week, the  SLEEP conference, the Annual Meeting of the Associated Professional Sleep Societies, was held in Baltimore.  I’ve been eating up Tweets sent by those attending the sessions!  I was also forwarded a press release regarding a series of studies supported by Jazz Pharmaceuticals designed to show patient impact as well as comorbidities, costs, and healthcare […]

November #Nchat Recap: The Road to Diagnosis

Thank you to everyone who attended the November #Nchat on Twitter on November 3rd.  These chats are a great way to share experiences and to ask advice from others who may have been faced with the same problem.  This month, the chat was focused on the road to diagnosis and revealed instances of misdiagnosis, lack […]

The road is long, but I think I’m moving forward

As I looked around the waiting room of the sleep specialist’s office, anxiously awaiting to hear the results of my sleep studies, I couldn’t help but notice an elderly couple sitting on an adjacent side of the room.  The lady was fast asleep on her husband’s shoulder, mouth slightly open.  He sat patiently for some […]

Before you can move forward, you gotta remember where you’ve been

Beautiful motivation to stay awake

With two days to go until the Virtual Run/Walk for Narcolepsy, it occurred to me that I’ve neglected to share MY story…. I’ve been a sleepy person as long as I can remember. My parents were divorced and lived three hours apart, meaning we had to make weekend trips once a month to go visit […]