July #Nchat Recap

July 6th, 2013, marked the 11th Twitter narcolepsy chat, #nchat.  It is hard to believe what started as a little idea to help people with narcolepsy communicate with other people with narcolepsy has become such a wonderful tool for finding answers, advice, and support.  This month, questions came from the suggestions participants wrote in the survey that […]

Research Presented at SLEEP 2013 Demonstrates Challenges Faced by People with Narcolepsy

Earlier this week, the  SLEEP conference, the Annual Meeting of the Associated Professional Sleep Societies, was held in Baltimore.  I’ve been eating up Tweets sent by those attending the sessions!  I was also forwarded a press release regarding a series of studies supported by Jazz Pharmaceuticals designed to show patient impact as well as comorbidities, costs, and healthcare […]

HAWMC Day 2: Introduction to Narcolepsy

If you’ve ever seen Rat Race, you’ve seen how narcolepsy is mostly portrayed in movies. Here is one of the scenes in the movie where the character is overcome with the urge to sleep: If only narcolepsy were that simple… or that funny… Narcolepsy is much more complicated than falling asleep randomly or falling asleep […]

So Over Weight & Cleva (Narcolepsy Poem) by Shelly Bell

Shelly and I follow each other on Twitter.  When she shared this poem with me, I knew I had to share it with the rest of the community. http://www.youtube.com/watch?v=IRn5HnfyTVc Thank you, Shelly, for writing this powerful message that so many of us can relate to in one way or another.   “Sometimes ya gotta get alright […]

Checking Myself Before I Wreck Myself

A mile and a half into my treadmill run yesterday, I felt a twinge in my lower back. The pain crept through my left glute, into my hip, and down my leg. Knowing it meant a flare up of sciatica, I stopped immediately and sat in the floor to begin stretching. My hip popped as […]

2012: Picking Up the Pace

The first week of 2012 is almost over. I’ve spent the last few days continuing to reflect on 2011. I’ve also done some thinking about what I’d like to work on in 2012. Since I ran a 5K in 2011, I decided to really step it up. You’d think the rational next step would be […]