Wednesday Words of Wisdom for the Weary: Workplace Accommodations

Despite a perfect medication regimen, ideal consumption of the proper foods, and good sleep hygiene, it may still be necessary to take scheduled naps during the day or to request a schedule change.  For those of us who work full-time outside of the home, this can be a real challenge.  Whether you’re worried about backlash […]

Wednesay Words of Wisdom for the Weary: Talking to Your Doctor

A visit to the doctor’s office yesterday has me thinking about patient-doctor communication and how we can do our part to improve the flow of information to get the best treatment possible.  For someone with narcolepsy (or any chronic condition), another visit to the doctor can be a source of stress, an unpleasant experience at […]

Words of Wisdom for the Weary: Exercise and Eating

This week’s Words of Wisdom for the Weary comes from a comment on a post from last week. I wanted to mention it for a post because I think the information is important. I am enjoying your blog. My 14 year old has narcolepsy with cataplexy . We are new at this. We are trying […]

Wednesday Words of Wisdom for the Weary: Symptom Variation

Dear Strides Against Narcolepsy, My friend told me that she has narcolepsy, but I’ve never seen her fall asleep. I thought narcolepsy means you fall asleep all the time. Was my friend misdiagnosed? -Anonymous Dear Anonymous, I must admit, when I first read your e-mail, I immediately went on the defensive. It’s hard for people […]

Monday Motivation: What CAN you do?

Anyone suffering from a chronic illness has times when they feel weighed down by all the things they cannot or think they cannot do. For instance, I cannot drive more than about 30 minutes to an hour. My husband no longer wants me to travel anywhere alone. I can’t eat the same way. I can’t […]

Wednesday Words of Wisdom for the Weary: Support

With only a fraction of the population – about 0.04% – being diagnosed with narcolepsy, it can seem difficult to find support. While I have a loving husband who provides a source of strength for me, it is sometimes necessary for me to find other people fighting the same fight. To find others who can […]

Wednesday Words of Wisdom for the Weary: Anesthesia and Narcolepsy

This past Sunday, a fellow person with narcolepsy asked a question on Twitter and Facebook about others’ experiences with anesthesia while on medications for narcolepsy. She had cracked a tooth and was concerned about previous problems of being adequately numbed prior to the start of dental work. The answers and the research that followed was […]

Wednesday Words of Wisdom for the Weary : Naps!

Did you read my post willpower? If not, give it a once-over and come back…. Following that post, I got a few messages from folks commiserating with me. There was a central theme: family members don’t understand that all it takes is a short nap – maybe 15-20 minutes – for us to feel more […]

Wednesday Words of Wisdom for the Weary

Happy Wednesday! If you’re not a member of the Facebook Narcolepsy Network Group, you should join! There have been some insightful discussions going on over there as of late. For this week’s Wednesday Words of Wisdom for the Weary, I’d like to share one of the questions asked on the group, as well as some […]

Wednesday Words of Wisdom for the Weary

It has been a couple of weeks since I’ve done one of these posts. Going through my inbox, I noticed a lot of the same questions. The top three topics are what medications work, how to get family members to understand, and what kind of schedule I keep. (You guys must be reading my responses […]