Wednesday Words of Wisom for the Weary

Last week, we talked about the fear of passing narcolepsy and cataplexy to our children. If you missed the post, you can view it here. There haven’t been a lot of comments on the blog, but there have been lots of people chiming in on the Narcolepsy Network Facebook group, so be sure to check there as well in order to see others’ responses!

Here’s this week’s question:

Hi, my name is Tracy.  I was diagnosed with narcolepsy a few months ago.  I was wondering what medications you have tried?  My doctor started me on Nuvigil, but I don’t think it is helping.  Thanks!

Dear Tracy:

I’m so sorry you’re having a hard time finding a treatment plan that works for you.  Please do not give up.  Sometimes finding the right combinations is a long process of trial and error.  Unfortunately, what works for others may not work for you.  If your medications are not working, you need to call your doctor and let him or her know.

You also need to make sure you’re keeping a consistent sleep/wake and medication schedule every single day, even on weekends and while on vacation.  I know it’s hard, but trust me on this.  It really does make a difference.  It also helps to get a little exercise each day, even if you just walk for 20 minutes.  Also, avoid large, fatty or carbohydrate-heavy meals during the day as they can increase your sleepiness.  I know these things sound so simple, but taking care of your health is not a luxury.  It’s a necessity.  If you do not treat yourself well, no medication will ever stand a chance.

Do you have suggestions for Tracy?  Comment on this post! 

If you have a question, please send an e-mail to stridesagainstnarcolepsy@gmail.com.

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  1. […] With Narcolepsy” series, I will wait on answering the second question. We have also addressed the question about medication in a previous topic. That leaves the question about […]

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