Days 1 and 2: Meat and Vegetables, Meat and Vegetables…Stay AWAY from the Candy

I took the plunge yesterday and starting cutting those carbs. It wasn’t too terrible, other than I didn’t plan any snacks. By 10:00 yesterday morning, my tummy was rumbling. At the end of the day when I put what I’d eaten in my food journal, I’d barely consumed 1,000 calories. That freaked me out. Thanks to a combination of going gluten free and the Xyrem killing my appetite, I’ve lost a lot of weight already. I need to get at a point where I stop losing. Thank goodness for Facebook groups with helpful people. I’m armed with a list of foods to add more calories without adding a ton of carbs. Hooray!

Today? Yeah, today was hard. It’s not that I’m hungry; I can barely finish my meals. It’s that my brain is totally in shock. Case in point? I had this internal dialogue while preparing my daughter’s pancake breakfast:

Bad side: “Oh, yum, that smells good.”
Good side: “No.”
Bad side: “I can’t help it. Just a teensy bite?”
Good side: “Hello, silly, that has GLUTEN in it. AND carbs. But GLUTEN!”
Bad side: “”
Good side: “You’re lame if you eat that and will deserve the possible DAYS of being stuck in the bathroom if you do eat that. Plus, you’ll have to tell everyone you failed after one measly day.”
Bad side: “FINE. You win.”

Yeah, it was tough. The omelet I had was good, though I’m already getting tired of eggs after having them two mornings straight. It doesn’t help that I stopped liking the texture of eggs in the last couple of months. Odd, huh?

My company had trick-or-treating at the office today, so I took my little Cinderella. She was too excited! However, THIS is what I have in front of me, mocking me.

Holy sweet tooth, Batman!

Not to mention the bucket of Reese’s peanut butter cups waiting to be handed out tomorrow night. It’s all around me, taunting me. “We are your favorite candy and you cannot eat us. Bwahahahahaha!” I started chanting, “Meat and vegetables, meat and vegetables. Stay AWAY from the candy!” Every time I thought about eating HALF of a peanut butter cup, I’d say it again. It actually helped. Still, sugar is awfully addictive. Breaking the habit is going to be difficult.

I did better on my calories today. Win. I did not eat any candy. Win. Going gluten free was a walk in the friggin’ park compared to this mess. Tomorrow’s goal is to hit the pavement and get an idea of where I’m at in terms of running so that I can put together a training plan for the upcoming 5K in January.


  1. nic77e says:

    Its tough! I started a new diet plan around the same time I started medication. I don’t know whether to credit the meds, my diet, or my exercise with my 8kgs weight loss.. Although I’m not complaining at the moment!! I am also considering going gluten free to see if it improves my symptoms. . . so I would be very interested to hear how you go!

    • Heather says:

      Congrats on the weight loss! What sort of diet plan are you doing? I recommend trying the gluten free diet for at least three months before you say yay or nay. The biggest change I noticed was the lack of brain fog during the day. My cataplexy also got a little better, but then it got worse again….coinciding with an increase in sugar intake. I will keep you posted on how cutting down on the sugar helps!

  2. Gina says:

    I find myself chanting “Bacon, Bacon, BACON, BACON!” in times of duress. My weakness is pizza. With three boys in and out of the house we have lots of pizza hanging around. Even though they have their own fridge to keep the gluten stuff separate, it still calls to me when it’s in there. Yikes.

    My son is gf/lc too and he has been on the hunt for candy that he could have, knowing the Halloween sugar surge was coming near. He found some relief in the form of diabetic candy…sugar free Hershey’s, Reese’s, Life Savers, Jolly Ranchers, Werthers, and Peppermint Patties. Careful not to overdo the diabetic candy though because it could cause some digestive upset from the sugar alcohols.

    I’m so proud of you for being strong. Just a few more days and ketosis heaven will arrive in the form of energy and focus in spades. So keep chanting “Meat and Veg, Meat and Veg, Meat and Veg!” :)

    • Heather says:

      I think I’ll just stay away from candy altogether. I really don’t need it. The Atkins site recommends sugarfree jell-o, so if I get too desperate, I’ll do that instead, but I’m really going to try to hold off on anything like that for at least the first week. Sadly, I have to be careful about how much bacon I eat. A. For the sodium. (even the low sodium is still high when you’re taking Xyrem) B. if I eat more than a slice a couple days a week, I get heartburn. Stupid stomach!

  3. pkconx says:

    I’ve lived my whole life gluten free, except for cheating to eat out, when I’ll eat soy sauce. Have you found that cutting down on carbs helps you to manage your symptoms? I’ve always been a die-hard meat lover, but I also eat copious amounts of rice and Bob’s Red Mill oats. Does a high protein diet help you? Even before I was diagnosed with narcolepsy, I found that if i didn’t eat meat for a couple of days, I would start feeling weak, tired, and a vague malaise.

    Whenever I’m sleepy, I find myself craving sweets, so I always figured that was an instinctive desire for a sugar boost, though I’ve been considering cutting down on them, to try and be healthier.

    • Heather says:

      I’m new to cutting carbs and so far I’m not doing that great of a job. Ha! I do find that I’m more tired this week compared to last week, and my carb counts have been high, especially sugar. Sugar may help in the short term, but the crash later SUCKS!


  1. […] symptoms.  (To read about the first two days and my battle against Halloween candy, click here.)   Some interesting things have happened over the last few days. On day 3, I was sick with severe […]

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