December #Nchat Recap

The December #Nchat covered various topics from raising awareness to managing symptoms during the holiday season. Some common themes I noticed: There are so many ways people work to raise awareness. It makes me wonder how much more we could get done if we worked together on initiatives as a group instead of one person […]

Strides Against Narcolepsy Nominated for Wego Health Activist Award

I am excited to announce that Strides Against Narcolepsy has been nominated for a Wego Health Activist award in the category of Best in Show: Blog! When I first read about the nomination, I thought, “Me? A health activist?” I spent a fair amount of time thinking about what it means to be a health […]

Narcolepsy Twitter Chat Saturday, December 1st!

Get ready for another Twitter chat THIS Saturday at 5pm Eastern! Use hashtag #Nchat.  To read about last month’s chat, read this post. Do you have question/topic ideas?  Comment below or send them to stridesagainstnarcolepsy@gmail.com.  To learn more about making the most of a Twitter chat, check out this Quick Guide to Twitter Chats.  Hope […]

Two Days Until the Virtual Run/Walk for Narcolepsy Research!

Virtual Run/Walk for Narcolepsy Research July 14th Inspired by Makenna’s story, which you can read about here, I thought it was time that I did something besides donate a little money to the cause.  I want this cause to be bigger.  I want people caring as much about the daily struggles that we go through as […]

When Silence is not Golden : A Few Words About Advocacy

The following has been adopted from a speech I gave just two days following my diagnosis.  I am posting it here because I think the message is extremely important. Nobel prize winning American author William Faulkner said, “Never be afraid to raise your voice for honesty and truth and compassion against injustice and lying and […]