Overwhelmed

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It’s nearly 2am. I’m pacing around my house, probably embedding a path through the living room, around the kitchen island and back again. I have a baby secured to my chest with a $50 piece of cloth that took me a good hour to tie correctly the first time I tried. This baby will not […]

Sausage, White Bean, and Kale Soup

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I’ve been in a dinner slump lately.  Actually, I’ve been in a breakfast, lunch, and dinner slump.  Mostly because I’ve just been in a slump period.  With the change in seasons and going off medications this past August, I’ve been feeling in need of some comfort, some warmth.  I’ve had to adjust my expectations of […]

October #Nchat Recap

This month, #Nchat kicked into high gear with one of the best attendance rates so far!  From embarrassing moments to how we’d spend the day symptom free, we chatted about a wide variety of subjects this month.  As always, if you have any questions or topics you’d like to suggest for #Nchat, feel free to send me […]

September #Nchat Recap: Happy Anniversary, #Nchat!

September 7th was the one year anniversary of #Nchat, the monthly Twitter narcolepsy chat I and two other people with narcolepsy host.  When I suggested we try a Twitter chat, I wasn’t sure how it would be received.  It’s really cool to see that people are enjoying the chats and are benefitting from them!  Thank […]

2nd Annual Strides Against Narcolepsy Virtual Run/Walk Raises Over $500 for Wake Up Narcolepsy

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On the weekend of July 12-14th, people with narcolepsy and their supporters around the world participated in a virtual run/walk to raise money to support Wake Up Narcolepsy’s mission in funding research to find a cure.  With donations still trickling in as of yesterday, August 11th, the total amount raised was about $580.  Way to go, everyone!! […]

July #Nchat Recap

July 6th, 2013, marked the 11th Twitter narcolepsy chat, #nchat.  It is hard to believe what started as a little idea to help people with narcolepsy communicate with other people with narcolepsy has become such a wonderful tool for finding answers, advice, and support.  This month, questions came from the suggestions participants wrote in the survey that […]

When a Heroine Needs a Hero (Or Two): A Little Sister’s Perspective on Narcolepsy and Cataplexy

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This is one of my favorite photos of the older of my younger sisters and me.  (She’s on the left; I am on the right.)  We went on a trip to Daytona Beach, FL years ago.  2006 I think?  We had a blast as we do when we’re hanging out together.  I love all three of […]

Making Time to Exercise

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If only… One of the things I was most looking forward to when I decided to become a stay-at-home mom was having time to exercise more regularly. Since I changed my schedule to work in the office in the mornings and from home in the afternoons, I was losing my hour during the day that […]

2nd Annual Strides Against Narcolepsy Virtual Run/Walk July 12-14

I am pleased to announce the 2nd Annual Strides Against Narcolepsy Virtual Run/Walk to raise funds for narcolepsy research will be held July 12-14.  I’m even more pleased to announce that I’m partnering with Wake Up Narcolepsy, an organization whose mission is to support narcolepsy awareness and research to find a cure.  They have created […]

Research Presented at SLEEP 2013 Demonstrates Challenges Faced by People with Narcolepsy

Earlier this week, the  SLEEP conference, the Annual Meeting of the Associated Professional Sleep Societies, was held in Baltimore.  I’ve been eating up Tweets sent by those attending the sessions!  I was also forwarded a press release regarding a series of studies supported by Jazz Pharmaceuticals designed to show patient impact as well as comorbidities, costs, and healthcare […]