Balancing Act: Symptom Management and Medication Side-Effects


It has been weeks since I’ve posted anything of substance about my own condition.  The winter has been long and dark.  I’ve felt largely unmotivated and unproductive after work, not making time to do much else besides cook dinner for the family and spend some time with them before using the last hour and a […]

Requesting a Proclamation of Narcolepsy Awareness Day

Oh my goodness, I feel so giddy right now.  I sent in a request for the Governor of Missouri, Jay Nixon, to proclaim March 9th as Narcolepsy Awareness Day!  I’m a bit shaky with excitement at the moment. It all started when Sarah D. at Narcolepsy Network contacted me on Facebook to tell me about […]

Increasing Energy Levels With Exercise: It Starts With 10 Minutes


This is my daughter.  She’s got the most energy of anyone I know.  Shortly before I snapped this photo, she said, “Mom, I’m feeling a little tired.  I’m going to go get some energy in me.”  She proceeded to the den and began jumping on her little trampoline.  It’s not the first time she has […]

Interview with Julie Flygare, Author of “Wide Awake and Dreaming” Plus A Chance to Win A Signed Copy of Her Book


Browsing through the reviews 47 reviews already left on Amazon (and kicking myself for not leaving one of my own yet), I noticed some common themes from those who have read Julie Flygare’s “Wide Awake and Dreaming: A Memoir of Narcolepsy.” One such theme was that for people with narcolepsy, reading can be a challenge. I […]

Looking Forward: A New Year, A New Hope


Shortly after midnight, the fireworks started. Every year, my neighbors help the entire subdivision ring in the New Year even though some of us were perfectly happy doing so in our sleep. As I lay in bed, waiting for the loud booms to cease, I thought about all the Facebook statuses I’d read about 2012 […]

Officially in Training Mode

Last weekend marked eight weeks until the Children’s TLC Groundhog Run. This is the race my husband and I ran together last year and decided we would do annually as part of our anniversary celebration. He and I have been so fortunate to have a beautiful life together that we wanted to find a way […]

Narcolepsy Twitter Chat Saturday 11/3 at 5pm Eastern!

Get ready for another Twitter chat THIS Saturday at 5pm Eastern! Use hashtag #Nchat. Do you have question/topic ideas? Comment below or send them to To learn more about making the most of a Twitter chat, check out this Quick Guide to Twitter Chats. Hope you “see” you there!

The road is long, but I think I’m moving forward

As I looked around the waiting room of the sleep specialist’s office, anxiously awaiting to hear the results of my sleep studies, I couldn’t help but notice an elderly couple sitting on an adjacent side of the room.  The lady was fast asleep on her husband’s shoulder, mouth slightly open.  He sat patiently for some […]

Monday Motivation: Your Mood and How to Improve It

Last week was full of ups and downs, but if there’s one pattern to be noticed, it’s that working out while I was down lifted my mood back up. Source: via Heather on Pinterest   According to WebMD, “Improved self-esteem is a key psychological benefit of regular physical activity. When you exercise, your body […]

Monday Motivation: Are you the master of your fate?

Last week, I shared a short poem from The Grey that I found motivating. One of my readers responded with another thought-provoking poem. I liked it so much that I thought I’d share it with all of you. INVICTUS by William Ernest Henley Out of the night that covers me, Black as the pit from […]