A Hectic Week and a Time Out

13680713_10153659508160974_5496029267032984972_n

The stars aligned, and I have the house to myself this morning. Well, I should correct myself. The dog and I have the house to ourselves. But she’s a napping sort of dog, the perfect companion for a napping sort of person. At any rate, when my husband told me that he and his dad […]

Burn the White Flag

It was a Sunday morning, the light streaming in through the blinds as I lay in bed trying to do some work on my laptop to catch up after a busy week of physical therapy, school commitments, toddler wrangling, and feeling unwell. I was listening to a playlist on Spotify called “Happy Folk” as I […]

Trudging Through the Narcolepsy Brain Fog

SONY DSC

One of the most frustrating symptoms of narcolepsy for me is brain fog – that heavy feeling on my skull that clouds my ability to think and react.  Brain fog is like trying to drive through heavy fog.  Since the view is obscured, you slow down.  You must try to pay extra attention to your […]

Overwhelmed

20140806-025004.jpg

It’s nearly 2am. I’m pacing around my house, probably embedding a path through the living room, around the kitchen island and back again. I have a baby secured to my chest with a $50 piece of cloth that took me a good hour to tie correctly the first time I tried. This baby will not […]

Jack Michael is Here!

20140726-143621.jpg

Jack joined our family 22 days ago on July 4th at 4:06pm weighing 7lbs 15oz. He was 21 inches long. The last few weeks have been a blur of nursing, changing diapers, and trying to rest when I can without neglecting my 5 year old daughter. The newborn stage is rough, but we are getting […]

My Long Hiatus

Barefoot and Pregnant

Five months after my last post, I’m finally able to muster up some time and energy to provide an update.  I’m sorry I left you all hanging.  It has been a wild and crazy ride.  Here’s a hint: That’s a 25 week baby bump I’m rocking!  I’m carrying a baby boy due July 2nd.  As […]

Sausage, White Bean, and Kale Soup

soup

I’ve been in a dinner slump lately.  Actually, I’ve been in a breakfast, lunch, and dinner slump.  Mostly because I’ve just been in a slump period.  With the change in seasons and going off medications this past August, I’ve been feeling in need of some comfort, some warmth.  I’ve had to adjust my expectations of […]

September #Nchat Recap: Happy Anniversary, #Nchat!

September 7th was the one year anniversary of #Nchat, the monthly Twitter narcolepsy chat I and two other people with narcolepsy host.  When I suggested we try a Twitter chat, I wasn’t sure how it would be received.  It’s really cool to see that people are enjoying the chats and are benefitting from them!  Thank […]

July #Nchat Recap

July 6th, 2013, marked the 11th Twitter narcolepsy chat, #nchat.  It is hard to believe what started as a little idea to help people with narcolepsy communicate with other people with narcolepsy has become such a wonderful tool for finding answers, advice, and support.  This month, questions came from the suggestions participants wrote in the survey that […]

When a Heroine Needs a Hero (Or Two): A Little Sister’s Perspective on Narcolepsy and Cataplexy

196604_5217405973_4367_n

This is one of my favorite photos of the older of my younger sisters and me.  (She’s on the left; I am on the right.)  We went on a trip to Daytona Beach, FL years ago.  2006 I think?  We had a blast as we do when we’re hanging out together.  I love all three of […]