Making Time to Exercise

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If only… One of the things I was most looking forward to when I decided to become a stay-at-home mom was having time to exercise more regularly. Since I changed my schedule to work in the office in the mornings and from home in the afternoons, I was losing my hour during the day that […]

2nd Annual Strides Against Narcolepsy Virtual Run/Walk July 12-14

I am pleased to announce the 2nd Annual Strides Against Narcolepsy Virtual Run/Walk to raise funds for narcolepsy research will be held July 12-14.  I’m even more pleased to announce that I’m partnering with Wake Up Narcolepsy, an organization whose mission is to support narcolepsy awareness and research to find a cure.  They have created […]

How Hawaii Changed My Life

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On two occasions in April, I woke up in the 4:00am hour.  Willingly.  The first was on April 9th in order to catch a flight to Hawaii.  The second was just a couple days later in order to go on a photography tour.  The sunrise photograph above was shot sometime around 6:20-something in the morning.  For a person […]

Research Presented at SLEEP 2013 Demonstrates Challenges Faced by People with Narcolepsy

Earlier this week, the  SLEEP conference, the Annual Meeting of the Associated Professional Sleep Societies, was held in Baltimore.  I’ve been eating up Tweets sent by those attending the sessions!  I was also forwarded a press release regarding a series of studies supported by Jazz Pharmaceuticals designed to show patient impact as well as comorbidities, costs, and healthcare […]

June #Nchat Recap

I have much to update on since my last post almost two months ago.  First, I want to share the June #Nchat recap.  This was the tenth #Nchat and one of my personal favorites!  While we suffer differently as individuals, we have so much in common.  I’m so honored to be a part of the […]

April #Nchat Recap

Thank you so much to everyone who participated this month!  This was the biggest #Nchat so far!  It’s amazing to see word spreading about this opportunity to chat real-time with people with narcolepsy all over the world.  I’m so honored to be a part of it! The theme for this month’s chat was triggers.  We […]

#HAWMC Day 5: Aspirations

  Source:lovemorefearless.tumblr.com Today’s Health Activist Writer’s Month Challenge is “If I could do anything as a Health Activist…” Think big today! Money/ time/ physical limitations are no longer an issue. What is your biggest goal that is now possible? I’m still working on finding my voice and my own niche in the world of advocacy.  […]

#HAWMC Day 3: Wordless Wednesday

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HAWMC Day 2: Introduction to Narcolepsy

If you’ve ever seen Rat Race, you’ve seen how narcolepsy is mostly portrayed in movies. Here is one of the scenes in the movie where the character is overcome with the urge to sleep: If only narcolepsy were that simple… or that funny… Narcolepsy is much more complicated than falling asleep randomly or falling asleep […]

Health Activist Writer’s Month Challenge Day 1: Getting Started

Source: kristanlynn.com via WEGO Health on Pinterest   I’m really excited to join the Health Activist Writer’s Month Challenge organized by WEGO Health. This is the first time I’ve participated in such challenge. The goal is to post every single day – a loft goal for this girl! I’m not sure I’ll be able to […]