June #Nchat Recap

I have much to update on since my last post almost two months ago.  First, I want to share the June #Nchat recap.  This was the tenth #Nchat and one of my personal favorites!  While we suffer differently as individuals, we have so much in common.  I’m so honored to be a part of the […]

Interview with Julie Flygare, Author of “Wide Awake and Dreaming” Plus A Chance to Win A Signed Copy of Her Book

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Browsing through the reviews 47 reviews already left on Amazon (and kicking myself for not leaving one of my own yet), I noticed some common themes from those who have read Julie Flygare’s “Wide Awake and Dreaming: A Memoir of Narcolepsy.” One such theme was that for people with narcolepsy, reading can be a challenge. I […]

Days 1 and 2: Meat and Vegetables, Meat and Vegetables…Stay AWAY from the Candy

Holy sweet tooth, Batman!

I took the plunge yesterday and starting cutting those carbs. It wasn’t too terrible, other than I didn’t plan any snacks. By 10:00 yesterday morning, my tummy was rumbling. At the end of the day when I put what I’d eaten in my food journal, I’d barely consumed 1,000 calories. That freaked me out. Thanks […]

Attitude Adjustment

Source: google.com via Pamela on Pinterest     In my last post, I mentioned that I’ve been having a bit of a regression of sorts. The term I used was a “sickly, sleepy, slob” to be exact. I’ve been in a better place compared to where I’m at now. I’ve felt better. As frustrating as […]

Narcolepsy Twitter Chat Saturday, October 6th at 5pm Eastern

I’m pleased to announce the second Twitter chat for narcolepsy this Saturday at 5pm Eastern.  Please use hashtag #Nchat. I will be driving back from Florida, so I’ll be participating but not moderating.  To learn more about making the most of a Twitter chat, check out this Quick Guide to Twitter Chats.  Hope you “see” you […]

Before you can move forward, you gotta remember where you’ve been

Beautiful motivation to stay awake

With two days to go until the Virtual Run/Walk for Narcolepsy, it occurred to me that I’ve neglected to share MY story…. I’ve been a sleepy person as long as I can remember. My parents were divorced and lived three hours apart, meaning we had to make weekend trips once a month to go visit […]

Monday Motivation

Source: Uploaded by user via Heather on Pinterest     I’ve always believed that destiny isn’t something that just exists. You must create it. I am hard at work these days, trying to create mine.

Virtual Run/Walk for Narcolepsy Research July 14th

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Inspired by Makenna’s story, which you can read about here, I thought it was time that I did something besides donate a little money to the cause.  I want this cause to be bigger.  I want people caring as much about the daily struggles that we go through as they do about every other illness.  […]

Let’s Raise Some Money for Narcolepsy Research! A Virtual Run July 14th

Isn't she soooo cute?!

Today on one of the Facebook groups I’m a member of, a link to a blog post was shared. The blog post had me in tears while at work, but it has me feeling hopeful and inspired to do something to make a bit of a difference in this world. I received permission to share […]

Wednesday Words of Wisdom for the Weary: Support

With only a fraction of the population – about 0.04% – being diagnosed with narcolepsy, it can seem difficult to find support. While I have a loving husband who provides a source of strength for me, it is sometimes necessary for me to find other people fighting the same fight. To find others who can […]