2nd Annual Strides Against Narcolepsy Virtual Run/Walk July 12-14

I am pleased to announce the 2nd Annual Strides Against Narcolepsy Virtual Run/Walk to raise funds for narcolepsy research will be held July 12-14.  I’m even more pleased to announce that I’m partnering with Wake Up Narcolepsy, an organization whose mission is to support narcolepsy awareness and research to find a cure.  They have created […]

Research Presented at SLEEP 2013 Demonstrates Challenges Faced by People with Narcolepsy

Earlier this week, the  SLEEP conference, the Annual Meeting of the Associated Professional Sleep Societies, was held in Baltimore.  I’ve been eating up Tweets sent by those attending the sessions!  I was also forwarded a press release regarding a series of studies supported by Jazz Pharmaceuticals designed to show patient impact as well as comorbidities, costs, and healthcare […]

#HAWMC Day 5: Aspirations

  Source:lovemorefearless.tumblr.com Today’s Health Activist Writer’s Month Challenge is “If I could do anything as a Health Activist…” Think big today! Money/ time/ physical limitations are no longer an issue. What is your biggest goal that is now possible? I’m still working on finding my voice and my own niche in the world of advocacy.  […]

HAWMC Day 2: Introduction to Narcolepsy

If you’ve ever seen Rat Race, you’ve seen how narcolepsy is mostly portrayed in movies. Here is one of the scenes in the movie where the character is overcome with the urge to sleep: If only narcolepsy were that simple… or that funny… Narcolepsy is much more complicated than falling asleep randomly or falling asleep […]

So Over Weight & Cleva (Narcolepsy Poem) by Shelly Bell

Shelly and I follow each other on Twitter.  When she shared this poem with me, I knew I had to share it with the rest of the community. http://www.youtube.com/watch?v=IRn5HnfyTVc Thank you, Shelly, for writing this powerful message that so many of us can relate to in one way or another.   “Sometimes ya gotta get alright […]

Requesting a Proclamation of Narcolepsy Awareness Day

Oh my goodness, I feel so giddy right now.  I sent in a request for the Governor of Missouri, Jay Nixon, to proclaim March 9th as Narcolepsy Awareness Day!  I’m a bit shaky with excitement at the moment. It all started when Sarah D. at Narcolepsy Network contacted me on Facebook to tell me about […]

Increasing Energy Levels With Exercise: It Starts With 10 Minutes

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This is my daughter.  She’s got the most energy of anyone I know.  Shortly before I snapped this photo, she said, “Mom, I’m feeling a little tired.  I’m going to go get some energy in me.”  She proceeded to the den and began jumping on her little trampoline.  It’s not the first time she has […]

December #Nchat Recap

The December #Nchat covered various topics from raising awareness to managing symptoms during the holiday season. Some common themes I noticed: There are so many ways people work to raise awareness. It makes me wonder how much more we could get done if we worked together on initiatives as a group instead of one person […]

Strides Against Narcolepsy Nominated for Wego Health Activist Award

I am excited to announce that Strides Against Narcolepsy has been nominated for a Wego Health Activist award in the category of Best in Show: Blog! When I first read about the nomination, I thought, “Me? A health activist?” I spent a fair amount of time thinking about what it means to be a health […]

Raising Funds and Awareness Through Celebrating: Cat’s Birthday Benefit for Wake Up Narcolepsy

Cat Thoma isn’t having a typical birthday party this year.  Diagnosed with narcolepsy in 2012 after suffering with symptoms since childhood, she decided to ask her friends and family to help fund research for a cure instead of asking for traditional gifts.  She contacted Wake Up Narcolepsy, a not-for-profit organization “dedicated to supporting narcolepsy awareness […]